We had Tim’s dr appt today. After waiting for almost 45 minutes in the waiting room, he was taken back to the EMG room and proceeded to wait another 20 minutes. They did the EMG only on his arms, as it had not been a long enough wait since they did the EMG on his legs. It would not have been long enough between testings to show how much deterioration there has been.
The long and short of it is that the EMG wasn’t designed to diagnose what is going on with Tim. So, we still don’t have a diagnosis. Dr. Hungs mentioned that in some ways, the test results fall in line with ALS, but he isn’t presenting in the right way to match up with an ALS diagnosis. (Whew.)
We are now being given a green light to get a second opinion. Dr. Hungs has given us contact information for Hennepin County Medical Center. They have a neuromuscular unit that Dr. Hungs says is really good. He also mentioned the University of MN. Interestingly, he has never mentioned Mayo. We’re not sure what to think about that.
So the bottom line is that this appt ended up about where we figured it would. Another test – no results. Please keep praying that our next choice would reap the results we need. That whoever we see next will be able to find a diagnosis and a path to restoration.